Almost 3 years of Dizziness

Yep I am dizzy in this photo!

I used to love September it's the month of my birthday, when days get warmer and longer and when everything is green and lush. But a few years ago, I began to not like September, the reason being it marked when my dizziness started. The dizziness that we still can't figure out the cause and the dizziness that has ruled over me since. I have had all the tests, seen all the specialists and I am labelled a medical mystery, no one wants to touch me because everything is normal, yet it still gets worse and nothing we have tried has helped me. I have had multiple diagnoses everything from Vestibular Migraines to my anxiety causing it (that one got shut down pretty quick by my doctor and psych thankfully) to the medication I have taken for my anxiety causing it (again my doctor shut that down quickly) most recently PPPD. 

People accuse me of making it up or making it worse than it is and to that, I wonder who on earth would make this up and why would they make it last for 3 years slowly getting worse. I have heard every comment about my dizziness from that it's clearly my anxiety causing it to am I sure it's not my anxiety medication - the medication I have taken for over half my life I might add. Everyone has a medical opinion of it but very few have the degrees to back it up. 

I have tried the migraine diet, increased my exercise, eaten low carb high protein, started doing Pilates, see a personal trainer, started eating healthier and lost weight but none of that has helped with my dizziness. I feel and look physically great except for my dizziness. 

I have tracked my food, my sleep and my heart rate, my period cycle, you name it I have tracked it hoping that something will give us a clue as to what could be causing it. I rarely drink alcohol and drink decaf coffee twice a week max none of which have an impact on my dizziness.

I have taken every medication possible and endured a number of side effects including hallucinations. I

A visual of how my dizziness feels

have had multiple MRIs, balance tests, heart tests, blood tests and had my head shaken multiple times. I get my eyes tested every year just in case it could be my eyes impacting it. I have seen the top Vestibular Physio, the head of neurology at a hospital, an ENT who specialises in odd cases, and a neurologist who specialises in dizziness. I have spent easily $5000 on trying to get answers and I have nothing to show for it. My doctor has called internal medicine specialists who won't take me as they can't help me and spoken about it to colleagues. I am labelled my doctor's most complicated patient which isn't a label anyone wants especially in their 20s. I am for all intents and purposes a case study, a puzzle that no one can solve. 

I get told I need to submit my dizziness to the diagnosis column in the New York Times or that I need Dr House but at this stage I have accepted that I am undiagnosable. I have read multiple medical journal articles, trying to find something anything that could give me a clue as to why I am dizzy. 

I have cried so much over this, and I can't help but wonder where this dizziness will end. I endure some days when I have back-to-back major dizziness episodes on top of my usual dizziness. The dizziness wakes me up during the night and I never escape it even when I am dreaming. 

This is what almost 3 years of dizziness looks like and I am over it and I just want it to end.